Supporting Families of Children with Complex Neurodisability

We’re working with parents, health professionals, and researchers to co-adapt and pilot test the Baby Ubuntu programme for families of children with complex neurodisability (such as cerebral palsy) in East London, United Kingdom. This is the first time Baby Ubuntu has been adapted for a high-income setting. Our programme is called Encompass which is a 10-module participatory group programme facilitated by a healthcare professionals and parents with lived experience. Encompass aims to support parents, caregivers and families in navigating the journey of caring for a child with complex neurodisability.

Research & Publications

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•Jul 22, 2025

Adapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting

•May 03, 2025

A coadapted community-based participatory group programme for parents/carers of children with complex neurodisability (Encompass-2) a pilot and feasibility study protocol

•Jul 11, 2024

‘There was nothing, just absolute darkness’ Understanding the needs of those caring for children and young people with complex neurodisability in a diverse UK context- A qualitative exploration in the ENCOMPASS study

•May 24, 2023

Adapting a participatory intervention for caregivers of children with complex neurodisability from low resource to high income settings Moving from “Baby Ubuntu” to “Encompass”