A coadapted community-based participatory group programme for parents/carers of children with complex neurodisability (Encompass-2) a pilot and feasibility study protocol
Supporting Families of Children with Complex Neurodisability
Weāre working with parents, health professionals, and researchers to co-adapt and pilot test the Baby Ubuntu programme for families of children with complex neurodisability (such as cerebral palsy) in East London, United Kingdom. This is the first time Baby Ubuntu has been adapted for a high-income setting. Our programme is called Encompass which is a 10-module participatory group programme facilitated by a healthcare professionals and parents with lived experience. Encompass aims to support parents, caregivers and families in navigating the journey of caring for a child with complex neurodisability.
