Alea Jannath

Alea Jannath

• Lived Experience Parent Partner, Person-Centred Active Support (PCAS) facilitator • London

My professional journey is deeply rooted in my lived experience, which serves as the foundation of my role as a qualified Parent Facilitator. By sharing my personal insights, I aim to empower other parents and carers facing similar challenges, helping them navigate the available services and opportunities with confidence.


Recently, I established the SEND (Special Educational Needs and Disability) Community group, a parent-led initiative designed to provide support, guidance, and a sense of belonging to families of children with special educational needs and disabilities. In addition, I organise jewellery workshops that are open to all, with some specifically tailored to SEN parents, fostering creativity and connection within the community. I have also just started my own podcast.


I learnt about Person-Centred Active Support (PCAS) when I was invited to attend a workshop. PCAS means for me and my family that my child with a disability can do things that are part of everyday life. I’ve been co-trained to deliver PCAS, which was a new experience that I really enjoyed, I felt connected to other parents because I am coming from a parent’s point of view.

A Big Step- Travelling to Germany for the EACD Conference

In this powerful blog post, Alea Jannath, one of our Encompass parent partners shares her experience of travelling to Heidelberg, Germany for the 2025 European Academy for Childhood-onset Disability conference