Keely Thomas

Keely Thomas

• Lived Experience Parent Partner • London

Keely is a mother to a 16 year old young man with cerebral palsy and epilepsy. When he was first diagnosed there was limited, if any, advice or support for our journey ahead. I worked for 6 years as a SEND (Special Educational Needs and Disability) teaching assistant and have learned a lot along the way. Being involved with the Encompass study I will hopefully be able to help those in the early stages of diagnosis to ease the loneliness and struggles through my lived experience.

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Reflecting on the EACD & IAACD conference in Heidelberg

In this blog post, Keely Thomas, one of our Encompass parent partners, beautifully shares her experience of travelling to Heidelberg, Germany for the 2025 European Academy for Childhood-onset Disability conference