The ENCOMPASS Study
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Research Aims
Long-term Aim
The overarching aim of the co-adapted "Encompass" programme is to improve the knowledge, skills and confidence of parents/carers of children with complex neurodisability. To provide opportunities for peer support, empower parents/carers in navigating community health systems, and to improve the wellbeing and quality of life of the parents/carers and their children.
To co-adapt the "Baby Ubuntu" programme
The first aim of the study is to co-adapt the "Baby Ubuntu" programme for use in two diverse, urban London boroughs; Newham and Tower Hamlets.
The co-adaptation phase will be completed alongside parents/carers with lived experience, health professionals and researchers with knowledge of the context and of "Baby Ubuntu".
To test whether it can be delivered in a UK context
The second aim of the study is to test whether it is feasible and acceptable to carry out the co-adapted "Encompass" programme with groups of families in Newham and Tower Hamlets, East London.
This will help us to know if it is worth continuing the work with a larger study across multiple sites that could assess the impact and cost-effectiveness of the programme.
